Four years ago today we attended a small funeral for our tiny son. It is such a surreal experience. A week before I was washing clothes for Koen and organizing the closet in his nursery, and just days later Kevin was carrying his body in a casket. In one week, I gave birth to my stillborn son, left the maternity floor with no baby in hand, met with a funeral director, chose clothes for Koen to be buried in, picked cemetery plots - not only for Koen - but for Kevin and myself, met with a pastor to officiate our son's funeral, and strangely told the series of events surrounding Koen's death while maintaining composure to those I came in contact with. In my alone times sat in Koen's nursery, rocking in the chair, squeezing stuffed animals fiercely - I needed to hug something because my arms physically felt empty - while staring at an empty crib, and at times feeling such a heavy weight on my chest that I found it difficult to speak or even breathe. That grief, that week, and the weeks following are so sacredly cherished for me, as crazy as it sounds, I long for that feeling. That extreme grief is so closely tied to Koen in my memories, if I can feel that grief again, then I can almost feel his tiny body in my arms and see his face that I covered in kisses.  I think I also long for that feeling, because mixed in to that grief, was Jesus's hand holding me.  I have never felt so close to death, so close to Christ.  That time was sacred for me.

I miss Koen. And will every day while I remain on this earth. But four years later, I can say - on most days, it is well with my soul. In the last month I have learned the history of that beloved classic hymn. It was written by Horatio G. Spafford. He was a lawyer and businessman in Chicago and a father of five, four girls and one boy, in 1871, but that year lost his son to pneumonia. In 1871, his business also experienced loss in the Chicago fire. His business recovered, and in an attempt to bring some joy back to his family he planned a trip across the Atlantic for a holiday in Europe. Business delayed him, but he sent his four small girls and wife ahead. Four days into their voyage, their ship, the Ville du Harve, crashed in to another large ship. Within 12 minutes the ship sank. Spafford's wife, Anna, was found floating and was rescued by a small row boat. All four of their daughters, were all lost at sea. Within two years this couple lost five small children. I cannot fathom. Anna traveled alone on another vessel for 9 days to Wales. No cell phones or email to communicate the horror to her husband. When she arrived in Wales she sent a wire to her husband that began "Saved alone, what shall I do?". Spafford journeyed across the Atlantic and while on that journey he wrote the hymn "It Is Well With My Soul".  He and his wife started over and had three more children, losing yet another to pneumonia.  They buried six of their eight babies.  I cannot fathom the holes in their hearts, yet their faith remained. 

I remember singing this song from the hymnals at Novesta Church of Christ as a child.  The words always spoke to my anxious heart, but never cut me to the core like they have this month.  Spafford was in agony, in pain that I cannot comprehend, but my guess is he was feeling that same extreme grief, mixed in with Jesus holding him that I also experienced.  I believe Jesus must have been calming him, reminding him that he could nail his pain and heartache to the cross, begging Stafford to allow Him to carry his suffering.  Telling him that he saw him in his helpless estate.  Jesus suffered for us, so that He could carry our suffering.  That kind of love descends down and wraps us up when we are hurting the most.  

While I lay in the hospital on bedrest fearful that Tobin's life would also be lost, I clung to this scripture:  
"From the end of the earth I will cry to you, when my heart is overwhelmed: lead me to the rock that is higher than I."  Psalm 61:2
Much like Stafford, I was reminding myself, to cling to Jesus, for Him to take away the fear, the heartache.  He is there for you to call out and cling to, too.  He is the one who can calm your hurt, settle your soul, and give you the peace that is only found through him.

So on this day of reminders of heartache, it is well with my soul.

Life is so hard, isn't it? Some roads seem to hold more heartache than others, but no one has a life free of struggle and pain. Today is May 24th, and I anticipate death arriving in 3 days. I can feel the cloud this week. I have a knot in my throat, a pit in my stomach, and tears on the edge at all times. This Saturday it will be four years since the birth and death of Koen. This is a week filled with much guilt for me. I felt weird all week, had noticed things, felt kicks less frequently. Why wasn't I more adamant? Why did I push through? What if I had noticed? What if he was taken out before death? Why did my body fail and cause the death of my own son? Why didn't God protect him, why didn't he push me to ask more questions? How long was he dead inside my body? The only question I think I can answer, is the last one. I wasn't aware at the time. But I could tell you the moment even that Koen died. My eyes closed as I rode in the car with Kevin and Hackett on our way to dinner on May 25th. I was overcome in that moment, felt awful, and couldn't shake the weird emotional and physical feeling. I think I felt his spirit leave his body and mine. We went to Loon's Baseball game after, and I didn't speak or move the entire game. It's haunting.

Hackett has been struggling at school, life is hard, and relationships aren't easy. He seems settled in our new home and life, but then things occur that make his heartache, and he pines for what was. It is so hard to watch. We want to save our kids heartache and pain, but life doesn't allow us that luxury. I debated sharing this image of Hackett from our Mother's Day with Koen. But he is not shy about his feelings with us, and I know so many of you that follow my story have experienced loss too. So I share to help you see how profoundly impacted our (mine and your) kids are. The loss of Koen devastated Hackett. He is not impacted daily, but when he is reminded of what he lost - not what Kevin and I lost - but what he lost. His brother, his playmate, his hopes and dreams for a sibling - it hurts his heart. I know he flashes back too. He was old enough to remember the turmoil and pain. Old enough to remember his dad carrying his brothers casket to his grave. Old enough to recall his mom being in a fog of grief. It pains me to see. Hurts me to know that his road at young age already has bumps and sharp turns. He made me this book on Mother's Day all on his own. Moving is his narrative in life, but so is feeling supported and loved. It both broke my heart and made it explode with gratitude at the same time.

Life's road is so hard, but when we feel loved and supported by those who walk alongside us it makes it so much easier to bear. I listened to a sermon that had a profound impact on me around Easter, and plan to listen and study more, and share soon. It centers around the scriptures in Luke 24 on the road to Emmaus. Jesus had been crucified, and had just been resurrected. I mean, what a huge moment for Jesus, right? But do you know what he did? He found a sad couple, who were experiencing heartache at the death of Jesus himself, and were walking from Jerusalem down the road to Emmaus back to their home. Jesus showed up on their sad road. He saw sadness on their faces and he walked with them all the way home. This couple saw Jesus as a man during this walk and did not recognize him until he revealed himself to them at the end of the road. Jesus showed up on my road to Emmaus too. Sometimes I don't understand, and don't see him on the walk, but he is there walking right with me during my sadness. And when his preseence is revealed to me I often have a moment where I fall to my knees in gratitude. He was there all along. He is with Hackett walking along side him too. How I wish I could spare Hackett the heartache, but the ability to show him at age 10, that he is never alone on his road, especially when it is filled with sadness, is the best give I could ever give him. You are alone on your road either, my friends. Jesus is walking right alongside you in your sadness too, even if you can't recognize him.

It's Mother's Day. I will never get to spend Mother's Day with Koen, in the real sense of the word. I only had one Mother's Day with him while his heart was beating. The Mother's Days since his death, a storm cloud has hovered. I found it difficult to be fully present, guilt sets in. It has been hard for me to accept our story, this is not how I mapped out my life. But today was perfect. We found ourselves in Midland, which is now 2 hours from our home and Midland is where we left Koen.

My perfect Mother's Day was spent at a soccer tournament in the cold wind of the morning, watching my Hackett, a bit in over his head, but given an amazing opportunity to play at a more competitive level. I was able to watch him overcome his anxiety and play, and that filled my heart with pride. We grabbed a late breakfast from Panera and took it to Koen. I had brunch with all my boys. Picnicking at the cemetery is my new perfect. And that's okay. If given the choice, I would have written our story different, but my story version may not have included Tobin. My version, wouldn't have grown me as a person, wouldn't have exploded my level of empathy, wouldn't have changed my perspective on life, wouldn't have grown my faith, wouldn't have made me slow down to breathe and appreciate the smallest things. I think I have reached an acceptance phase of my grief, although that doesn't mean I stay in that space every day. But today, as we walked through our day together as a family, I was reminded that my day was perfect because I allowed it to be. I didn't fight it, feel guilt, or wish for something else. My boys showered me with love. Completely rained down love over my soul, and its hard to feel sad when given so much love. We hiked at the Nature Center near our old house, and drove through our old neighborhood, but then came home. And home felt like home. We have fully accepted that change too. And that felt perfect too. Your wish, Your will, Your way, Jesus.

Kev made a book for me from Tobin, complete with hand drawn images - which make me laugh and cry. Hackett made me his own book too. Here are both their last pages. Life even in its imperfections, it so amazingly beuatiful. I pray you found beauty today, even in a small way.

My Facebook memories continue to haunt me, while simultaneously helping me heal.  Today it was a picture of my first grade Hackett at a class at the hospital for older siblings, as he excitedly was preparing for Koen to arrive.  The picture is blurry, but his smile speaks volumes.  He had been missing the opportunity of having a sibling, and was over the moon with excitement to not be alone to laugh and play.  Overnight that joy was stolen May 27th.  It's May now.  May is hard.  I don't like May.  It brings my allergies, and with that reminders of all events leading to Koen's death, even my allergies play a role in the reminders.  It the tiniest things that trigger the hurt.  May makes my sinuses and my heart hurt.  

A blog post of mine from two years ago popped up today too, maybe I can figure out how to link it here.  I wrote about missing Hackett's entire baseball season in 2014 (I always hesitate when remembering the year Tobin was born, trying to make sure I don't confuse it with Koen's birth year, even that can be a trigger) as I laid in a hospital bedding fighting for Tobin.  Not only did I miss games in 2014, but in 2013 I went to some games pregnant and then showed to to others with no baby and no belly.  I was there, but I wasn't there.  For an entire year I was physically there at times, but still not present.  I was chatting with friend this week about mom guilt and the struggle we have when we can't be all things to our kids and other commitments.  I missed an entire year of Hackett's life in so many ways, and it was such a great year.  Is there anything cuter than a first grader?  Its kind of the perfect age and stage, and I was either counting the minutes until bedtime so I could cry or laying in a hospital bed.  There were beautiful moments in between, but that mommy guilt seems to trump that, and instead I often feel the ache of not being present.  I struggle missing school events, games, special moments with Hackett.  It tears at my heart.  I think that is why the grief with Koen, and the loss of a child is so extreme.  You take that normal typical mommy guilt, and its amplified by a number that is inconceivable.  I missed it all.  All of it.  Every single moment with Koen is missed.  There are no games, no school events, no belly laugh moments.  I didn't get any of them.  I only got to wash his clothes once.  Just one time.  No grass stains even.  I have missed it all.  And in my missing and my ache, I sometimes wonder, am I missing more.  In my grief am I missing these two little lives that are in my house right now?  I know the answer is mostly no, but it is so hard for me to watch time pass so quickly.  No matter how I try these sweet boys of mine just keep growing.  I just can't handle the thought of missing more.

My blog post from two years ago:
http://www.celebratethesadness.org/blog/interwoven

I write a blog about sadness. I have written less this last year, and you know what? I have been less sad. Not, not sad, but less. It will forever just be less. I will never get to a place of not being sad at some part of my core. I can laugh, feel the wind in my hair, smell the sunshine on my boys blonde hair, and feel peace, calm, and happy, but a single instant later hear a wind chime and be reminded Koen and have tears well up in my eyes. Grief, guttural grief, does not go away. You can find your happy, be happy, feel happy, but the sadness remains.

I love Facebook, I do. It has logged so many memories of our life and I love it especially for that. This week though is a tough one. Four years ago this week, we saw our healthy baby on an ultrasound. Our healthy baby who was growing perfect, my pregnancy without complications. His measurements at our 20 week ultrasound - perfection. Four years ago we learned that Koen, was Koen Wayne Soper, our second boy. We left that appointment, went out for lunch while Hackett was at school. Kevin and I were giddy, texting and calling, and smiling without end. Our excitement was bubbling over. It had been six years since we had Hackett, it felt all new again. On that day, I bought Koen his first outfit, the one I would bury him in. My goodness I loved him. I loved on Koen during pregnancy more than I did Hackett or Tobin. When I was pregnant with Hackett it was as if my maternal instincts didn't kick in until I saw him, that's when my heart exploded. I remember trying to talk to Hackett while I was pregnant, and thought "well that's weird". But with Koen, I knew. I knew how crazy in love I would be with him, and I loved him more from the beginning. Hackett was at school during my pregnancy and it was just me and Koen all day at home. I rocked him in his room, sang to him, talked to him. Loved on him, and told him I loved him all the time. Maybe that is typical with your second, or maybe God gave me that as a gift. Koen and I had time together, peaceful, happy time, even if it was brief. I literally floated on clouds during my second trimester with Koen, life felt perfect. And then it wasn't perfect anymore. It was the farthest thing from perfect. I stayed floating in the clouds though, as I watched the world race by as time stood still for me.

I tried to be less sad, tried to move on. We got pregnant with Tobin, and while he has put my heart back together in so many ways, my pregnancy with him shattered it further. Three years ago I was admitted to the hospital at 24 weeks gestation with our Toby V. It was hard to get too attached to my growing belly while doctors are giving you survival rate statistics that lead you to believe you may possibly bury your second baby in less than a year. I had Tobin's funeral planned in my head, I wanted to be ready the second time. I wasn't ready to bury Koen and had so many regrets, I didn't want to make the same mistakes twice. Our faith was strong, but his outlook was not promising. As my Facebook memories continue to pop up this week and read my blog updates from three years ago, my knees grow weak. Tobin was not supposed to make it to term based on all predictions medically. He is a miracle. Tonight my miracle is calling me "Jackie". "I love you, Jackie. Follow me, Jackie. Jackie, lets read a book." He can talk, run through puddles, and he tells me he's happy almost every day. "I so happy, momma." Does he know? Does he know what a gift his life is? I cry this week, for the loss of Koen, for the pain I felt as I fought for Tobin's life, for the little miracle who leads a happy life. I will forever be sad, but my boys - all four of them (I'm counting the biggest one too) - make me less sad when I realize how surrounded I am by their love.

Jesus has wrapped me in His love my whole life, but He brought me in even closer the last four years. Tears fell from my eyes as we sang this song on Palm Sunday this week, realizing how far we have come. I will forever praise him for carrying me, giving me Koen, and safely bringing Hackett and Tobin to me on earth.

After Koen died, I lived in a fog. A complete haze at times. I was present, but not there. I remember thinking "this is it, this is how it will always be". I didn't think I would ever escape the dense fog I was residing in. It didn't just last a week or two, but months. And even after the fog lifted and there were sunny moments, sometimes even days, it returned often. My pregnancy with Tobin brought another wave of fog. For over a year of my life I gripped tightly to the side of a mountain, clinging, reaching, and barely hanging on. I am sure the only way I kept my grasp is that Jesus had his hand under my feet, keeping me from plummeting down even further. Then we had Tobin. He was safe, we were relieved, we felt joy, and a new normal began for us. It felt good to breathe again, it felt good to pull myself from off of that ledge. You have read my journey as I processed my grief, so you know I did not ignore it, but at some point you make a decision to climb back on the train of life, instead of watching it race pass you. It seems that time heals, and in some ways it does, but truly time just allows you to grow accustomed to living with a shattered heart. I am not all better, even after almost 4 years, I am just better at living with a constant dull ache in my chest. Better at swallowing tears.

As we move further away from Koen's death, Kevin and I are learning that his death not only had a profound impact on our lives then, but also still today. The trauma lingers. We pushed things down out of survival. It changed us, both as individuals and as a couple. Both wanting to protect one another, we went to our own corners in sorrow. I share this knowing others can relate who have also gone through grief, but also to shed light on the fact that there is no time limits on grief and the trauma that someone endures. It gets wrapped up in the very fibers of your heart, your personality, how you are relationally, who you are at the core. You cannot expect others to be who they were in their "before" state, that person - their carefree nature and innocence is forever changed, not gone, but different. I flashback still. Not as often as I once did, but it happens. Some days I am off, impacted by the movie reel my mind plays for me. But my normal daily life is happy, filled with joy and parenthood frustrations, laughter and laundry. Some days or hours are hard though, traumatic even as you reluce memories. Extend grace to those you come in contact, you never know what trauma is lingering in their lives on the day you cross paths with them. Be kind..

I haven't blogged in months, I think after my last post, I needed a break. Needed to be alone with my own thoughts and feelings. But today, I feel like I have been swallowing tears all week, and much of what I am feeling I believe is universal.

​Hackett and Tobin are 7.5 years apart. It has given me such a unique perspective as Tobin hits stages that have been gone from our house for so long that I have almost forgotten them completely. Our house is once again filled with the sweet sounds of pretend play. This morning as we woke up Tobin told me about the owl, flamingo, and polar bear who were climbing up the mountain outside our window. All in great detail, even though the blinds were still closed and we live in one of the flattest areas of the state. Its beautiful to watch him find joy, delight, and excitement, from literally nothing but his own precious mind. I am not sure the last time I saw Hackett escape in to his own world, its been years. He lives in the real world now all the time. This world is hard, it can be very scary, and there are so many unknowns. As you grow it becomes increasingly harder to find that escape, to breathe easy, to fall asleep without worries of tomorrow.

This week Tobin has been battling a virus. I can't take away his runny nose, but a cuddle can bring the comfort he needs. Today as I had music playing, he walked over and wanted to slow dance. He just snuggled in for 10 minutes as we danced around the kitchen, nuzzling his nose on my cheek and giving me kisses. Hackett still likes to cuddle his mom, but on his terms and his time. When life is hard, often his first response is not to come for me for comfort any more, but find his own quiet place first. There is so much that I cannot fix. So much beyond my ability to make better now for him. He no longer fills my arms, but more my daily thoughts. I wonder if he is okay at school, am I making sure he is healthy enough, did he pick up those flu germs going around school, is he happy, does he think I am nagging him all the time, have we taught him enough, do we set a good example for Jesus, will we have to move again and will he be able to endure that yet one more time, why did I lose my patience last night with him, what time is his practice, he needs to eat lunch before his game, does he have pants clean for school, does he feel accepted in this environment, is he rushing through his school work, am I being a the mom he needs, did he wear his coat, why won't his teammates pass the ball to the new kid, does he still enjoy learning, how is the bump on the back of his head. And while this - and more - swirls in my head, much of it I cannot speak out loud. I can't, and don't want to, fix everything for him. His age is very real to me, I know in order to worry about him less, I must trust him more. I must allow him to stumble and trip on his own, to fall and get up without help, to triumph and win on his own too. He needs that confidence, that feeling of responsibility and ownership. I have stepped back, and I don't get to step closer again. I have to keep releasing him. Allowing him to grow up and mature. And I will keep walking the tight rope along the fine line of being there to catch and support him when needed, but allow him to balance on his own. To stand. To be strong. To be a man.

I feel like this is a universal challenge, but I had to let go of Koen. I walked away from the hospital, from his gravesite, and the town where he is buried. It wasn't slow with him. He was ripped from me. But I had Hackett, and clung tight to him. As I am healing and he is growing, I have to let go of him too.

A snuggle and a coloring page are sure easier. And before I know it I will have to begin letting go of Tobin too.

Motherhood is the most beautiful heartbreakingly wonderful challenging experience.

Three years ago today we learned that we were pregnant with Tobin, and announced it to the world, in desperate need of prayers and support. I didn't feel ready (but wondered if I ever would), it had been less than 6 months since I had given birth to Koen. As I thought about the possibility of being pregnant earlier that month while I was getting ready for work, I was so overcome with emotion. I struggled to catch my breath, I was sweating, and literally fell to my knees. The fear of just "what if" was too much. So much so that I was prescribed a medication for anxiety, that I never took. I wanted to too, but feared anythings impact of our "what if" baby. Once I knew I was pregnant with Tobin, fear remained, but in a much more manageable way. I knew I needed to seek peace, remain calm. I couldn't let fear be my demise, and his. I thought our road with Tobin would be smoother. After so much testing, it seemed the infection that killed my Koen had been a fluke, unexplainable. The pregnancy with Tobin was not easy, in many ways I have similar trauma from the 9 months I carried him, so many moments I thought we would lose him too. We didn't. He's here, he's healthy. He exhausts me many days. It's not rainbows and sunshine and miracles raining down from heaven everyday. Yesterday he told me he loved me for the first time and it was beautiful. He's smart, his body and mind formed perfectly. He could have been born at 21 weeks, that is what the doctors were preparing for. But my tough little boy fought, that strong spirit that tests my patience on days, gave him the strength to stay put for 16 more miraculous weeks. After two close calls just this week, and they really ar not that close, but they scare me more than I should, I can't lose another baby. I had told Hackett I was still worried about one of Tobin's wild man incidences, and Hackett told me wisely told me "mom, you can't worry about the past." And then quickly added, "But you can worry about the present!" (That's more boy through and through!) I needed Hackett's reminder and the realization that Tobin's fearless nature is what got him safely to us. I need to let him be him, push the limits, test the waters, and learn through it all. What will he be some day? So grateful to sit on the sidelines and be able to watch. So grateful he's here. Three years ago I didn't know if I could say that.

I started to write a blog a few weeks ago, but couldn't find the words. I have no interest in getting in to a political debate, just share my feelings, so I struggled to choose my words carefully. This election year, these candidates, the state of this country, the vote tomorrow and the outcome - no matter which - has been making my stomach hurt. I have been praying all week, pondering, thinking, discussing with those I love and trust. Tomorrow, while I disagree with the candidate on so many things, most of them how he conducts himself personally, I will be casting my vote for Koen. For the sanctity of his life that only occurred in utero, for others like him. I held his 27 week gestation dead body in my arms and he was a baby, a whole perfect baby, flawlessly formed and beautiful. His life mattered.

There seems to be no right choice, no perfect candidate this election year. Both are flawed, my choice is without a doubt. There are so many issues, so many reasons to choose your candidate. This just happens to be mine. What makes this country amazing is that you get to choose, you get to choose what is important to you, you get to cast your vote. And I hope you do just that tomorrow.

So tonight as I am listening to Christmas music, and reflecting on Jesus coming to earth. From the day of his birth he was not accepted by government, his stance was not popular while he was on earth, and he came to save us. He endured all of that because of his love for us.

“For God loved the world so much that he gave his one and only Son, so that everyone who believes in him will not perish but have eternal life. God sent his Son into the world not to judge the world, but to save the world through him." John 3:16-17

My prayer is that you feel his love tonight, find peace in it, and in the coming week, not feel the judgement of others during this time of such uncertainty. And rest assured that God is bigger than this election.

“I am the LORD, the God of all mankind. Is anything too hard for me?” Jeremiah 32:27

It's often a little trigger, last week I was watching something on TV and they went for a sonogram.  I held my breath while I was watching.  I fear for others, afraid that they may face the heartache that we did.  That trigger launches me back to May 27, 2013.  I relive every moment, some are beautiful and to be cherished.  Others traumatic at a level beyond description

I miss my Koen.  One of the hardest things about moving for me was the feeling of abandoning him, walking away.  It is a four hour round trip now, so I sought refuge at a nearby cemetery.  Cemeteries used to make me uneasy, not a place I was interested in lingering.  But now, I see peace and love, and heartache, and comfort.  I thought I only felt that where Koen is laid to rest, but last week as I walked amongst the graves of strangers I felt that same peace and comfort.  I only took about 10 steps before I saw this grave stone.  

Not exactly Koen, and pronounced much different, but seeing it took my breath away.  He's with me all the time.  As we strolled and read the tombstones, some dating over a 150 years ago, I saw so many babies.   I tended to the grave of a momma who lost her infant son in the 1800s.  And cried for her.  This ache I feel is something that mothers have felt since the beginning of time, I am sadly not alone in my heartache. Medical advances have helped to minimize those impacted by loss, but some deaths cannot be avoided.  I "what if" often, but there was nothing that I could have done to save Koen.  

Moving is hard.  So hard.  But in our travels I have been given the most amazing friends.  Ever.  My friends worked together this weekend, visited Koen for me, and gave him mums at his grave just like his mommy always did.  My gratitude is beyond all words.  He's not alone, not abandoned.  So many of you have poured out so much love of the years.  Thank you for loving me, loving Koen.